So the new medicine is working like the dr.'s wanted it to, and we haven't seen any more of those 'svt' rhythms so far! They will review her charts in the morning and let us know, but we could be possibly leaving tommorrow! Teagan's hand is still a big concern though. Today they went ahead and did a small bedside procedure to open up the sore and clean it out. They decided that she will need a minor surgery to take care of it completely and have scheduled that for next tues. (so frustrating!) So even if we go home in the next few days, we will be back on mon./tues. for the procedure. Teag is also having trouble keeping some of her feeds down when they give them to her at an increased rate. So we'll have to take it slow when we go home, but I know she'll progress so much faster when she can rest in her own bed! (or ours!) I got my lesson with the feeding tube today, and it wasn't as bad as I had imagined. Teag did great and was only mad at me for a few minutes! I also filled her prescriptions here at the pharmacy, and measured and administered her last set for the day. Its quite the schedule that we'll be on once at home, but I think it will all work out!
We started this blog to share the latest happenings at the Maxwell house and our daughter Teagan's 'heart journey'. Teagan was born March 21st 2008 with a congenital heart defect called Critical Aortic Stenosis which led to Hypoplastic Left Heart Syndrome. (HLHS)