I headed home today to be with Gavin while Trent remains at the hospital with Teagan. We are still awaiting the news on whether the new heart medicine is helping her with the 'SVT' rhythms she's been having. The cardiologist is supposed to review her weekend rythms tommorrow (monday) and let us know what he thinks. Once we get the ok on her heart being stable, we'll just have to work out our training with her NG tube (feeding tube) and her medicine schedule, and then we should be able to go home! Trent got a lesson in placing the NG tube today, and overall I think it went well. I'm a little anxious about learning everything, but Trent said it wasn't too bad. Teag will be going home with a feeding tube until she can take her full feeds from the bottle. Then we will be taking out that ugly thing! I can't wait to see her little face without it! We're praying for good news on her heart tommorrow, as that is the next hurdle we need to get through! I'm also praying that Trent gets a few hours of sleep these next few days! Thank you for all the comments on here, its so nice to hear all of the encouragement. Also, at the bottom of the screen there are a few links that better explain Teag's condition and treatment if you want more info!
We started this blog to share the latest happenings at the Maxwell house and our daughter Teagan's 'heart journey'. Teagan was born March 21st 2008 with a congenital heart defect called Critical Aortic Stenosis which led to Hypoplastic Left Heart Syndrome. (HLHS)