Teagan is one month old today! Which also means we've been here at the hospital for a month, and are really ready to get home! I came back over to Seattle today with Gavin and am taking the night shift with Teag while Trent and Gav get to spend some time together. Teagan is off of all the monitors she was hooked to, and only has the feeding tube now. They want to get us used to not having any monitor to look at for when we go home, but its very nerve wracking! I keep watching to see if her blanket is moving up and down so I know she's breathing! Tommorrow I should get my own feeding tube lesson and learn more about giving her the meds, and setting up a schedule. Her hand where the sore is actually looks worse today and she was irritable and in pain all day. They decided to start antibiotics this evening which she will get 4 times/day to hopefully clear up whats going on. We were hoping to be released sometime this week, but her hand might set us back a little. We'll have to see how much it improves over the next few days.
We started this blog to share the latest happenings at the Maxwell house and our daughter Teagan's 'heart journey'. Teagan was born March 21st 2008 with a congenital heart defect called Critical Aortic Stenosis which led to Hypoplastic Left Heart Syndrome. (HLHS)