Happy to have a full tummy again!
So as you can see, I ended up putting the feeding tube back in today. Teagan has just been working way too hard lately to eat, and hasn't been finishing her feeds. Its so stressful to watch her work so hard, and not be able to help her! We went to the dr. today and she'd only gained 1/2 oz since friday and I just knew it was time. My mom intuition was telling me,"just do it!" I feel like I've been putting it off for a week or two now, not wanting to put Teagan through that but ultimately I was forcing her to work harder to eat! It was pretty awful putting it in again now that she's so big and aware of everything going on. But once it was in and we both stopped crying she looked at me and smiled.... I was afraid she would hate me forever! I already feel a little less stressed about her feeds, because there's no pressure anymore. She can eat half of her bottle now and I can finish it for her. I'm just hoping that now we can start really packing on the pounds before her next surgery! She's 4 months and 1 week old today and she weighs 10lbs 14oz. This evening after 3 full feeds in a row (something that hasn't happened in over a month) she was back to her happy, spunky self!Teagan is supposed to be 'presented' this week during the cardiac surgical conference over at Children's. This means that the team will discuss her case and share their opinions on when her next surgery should be, etc... Our next cardio appt. is a week from wed. and I'm hoping that we'll have a tenative date so we can start planning.
6 comments:
Stay strong Susie! She could never hate you, no matter what! You two are in this together and I can clearly see in the pictures how much she loves you!! You are an amazing mom and you have been wonderful during these trying times. You are truly an inspiration to me everyday! My thoughts and prayers are always with you! I love you and miss you tons!!!
Love,
Jenn
Great decision honey....mommy's intuitions are always best! It will be easier on both of you now!
Can't wait to see you tomorrow!
love you,
nana
Hi Teagan's family: I was introduced to your site from Katie Allred. We have connected over email as both our kids have had their heart surgeries at Seattle Children's. I just wanted to say how precious and beautiful baby Teagan is! What amazing gifts these "heart" babies are! My son is 18 months old and we are coming up on his 1 year anniversary of the Glenn. He is doing really well and we pray he continues to stay strong and healthy until the Fontan! Take care and enjoy that beautiful little girl of yours!!!
Jesse
You did it! I'm so glad. The best for our children may not be the "easiest," but Jesus will give you the strength and wisdom to do what is needed. I'm so happy that you have a "happy" baby again. Anxious to see when they decide to do the Glenn.
Angie
It's always a bummer to have to put that darn tube back in... but seriously... you just want her to get all plump for the Glenn. You can always work on getting the feeds up to par after that. AND... she'll be so much stronger after the Glenn where finishing a bottle won't be as difficult.
Good luck little Ms. Teags!
Andrea
Susie, Jenn is right,Teagan could never hate you, at least not for another 13 yrs or so HA! putting that darn thing in again is for the best. You're a great mom & don't you ever doubt that. Just remember that God is with you every step of this journey! Thankyou for all the pics, you have a beautiful family & are truly blessed....Love & prayers, Aunt Karen
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