Trial Run

At our dr.'s appointment yesterday we talked about leaving Teagan's feeding tube out for a 'trial' run to see if she can do it. Dr. Lawrence agreed to give it until wed. and we'll see if she gains any weight and can handle her feeds. So for now, no feeding tube! We are still trying to figure out what is causing the bloody diapers. The new plan is to feed her straight formula (no breastmilk at all) until wed. and see if it clears up. (the formula is hypo-allergenic) If it does, then we know its something in my milk. If she is still having blood in her diaper then we'll talk about doing more invasive testing. She hasn't been eating as much as she should today so I'm preparing myself to possibly put the tube back in. We'll see how tonight goes!

Gav has been really sweet today. I found him in the living room wiping the coffee table with a baby wipe. When he saw me watching he said,"look mom I cleaned the house for you!" So sweet! (if only it were that easy!)

Fed up!

Notice anything different? No feeding tube! Teagan finally decided she had had enough! I've been replacing her tape daily lately because she pulls on it so much trying to get it out, and yesterday she succeeded! Poor girl has a nice rash on her cheek from ripping the tape off! It was so cute, as soon as she stopped gagging from the tube coming out she looked at me and grinned from ear to ear! It was this happy look of relief! I didn't have the heart to put it back in again and she's been doing better with her feeds lately, so I decided to let her try and do without it until today. We have a dr.'s appointment this afternoon and I'm going to talk to him about leaving it out for a week as a 'trial' to see if she can do it. I think as long as she is gaining weight and eating most of her feeds we should be ok. I know that there is a possibility that we may be putting it back in today, but I'm going to enjoy her sweet little tubeless face as long as I can! Teagan is already less fussy and slept like a rock last night! Please pray that she has the strength to continue to eat on her own so we won't need that yucky tube!

She is still having blood in her stools, and this morning was actually worse than its been in a week. I'm driving myself crazy trying to figure out if its something I'm eating thats doing it to her since it comes and goes. I've added eggs to my 'can't eat' list to see if that helps- we'll see! I'll update on here when I find out whats happening with her feeding tube! Wish us luck!

2 Months Old!

As of wed. May 21st, Teagan is 2 months old! Trent and I are amazed and truly feel blessed that Teagan is doing so well just a short time after her heart surgery. Its really amazing how far she has come!

Her dr.'s appointment on wed. went pretty well. All of the tests they've done to determine what the blood in her stools is caused by have come back normal. So for now, we're assuming its an allergy to something in her previous formulas or my breastmilk. I'm still off all dairy and also soy products and any nuts (peanut butter, etc...) So my diet isn't very exciting, but if it helps Teagan then I can handle it! Teagan is also finally gaining weight! On wed. she weighed 8lbs 5 oz!!! Which means that in the last 2 weeks she gained almost a whole pound! The dr. felt she was healthy enough to have a few immunizations so she received 2 of the 4 shots due at 2 months. She has been really sore and fussy the last 2 days but as of today (friday) is doing much better! Her immunization schedule is a little tricky because she's not allowed to have any 'live' vaccinations for 4 months because of the blood transfusion she received during her surgery. Also, she's not allowed to have any shots 1 month prior to her next surgery so we have to try and fit as many in as we can between now and then!

We still haven't received any word yet on the results of her holter monitor study from last wed. Someone from children's hospital is supposed to call us after they've reviewed her rhythms. If she's doing well enough, they'll start to wein her propranolol!

Thank you so much for all your prayers and support. Trent and I could not have gotten through the last 2 months without it! Thank you also for all of your comments on here- its so encouraging and we love reading them!