With so much going on in our lives and so much that I've missed writing about this last year, I decided it was finally time to update the blog! I figured I'd just start with today and add in some recent birthday posts and other things soon!
Celebrating Easter today at home with our little family was so great! Spring is finally officially here and the weather was beautiful! We are supposed to be quarantining ourselves for some upcoming surgeries the kids are having (more on this later) so church was out, and we enjoyed a quiet morning reading the story of the resurrection with the kids, eating candy with breakfast and riding bikes in the garage.
I wanted to make a big lunch to celebrate the day and Gav helped me in the kitchen chopping the potatoes and setting the table. He turned 7 in the fall and is quickly becoming quite the little man. He loves to cook and is always up for a project! We are still homeschooling and using a co-op 2 days a week. He's almost finished with 1st grade and doing great! His favorite things are math, science and history- but he's also quite the artist and is always making a craft in our schoolroom. We pulled lunch together around 1 and had Auntie Loren over to join us for our feast!
Bode loved the egg hunt too! He would open each egg he found and get distracted wanting to eat the candy right away while the other kids ran all over. He had a birthday last week also and is now a big boy 3 year old! He always has some funny question or face he's making- and we're always laughing at what comes out of his mouth. Today he fell in the dirt while running and he jumped right up and said,"that was wicked!" (I have no idea where he heard this?) He is our little firecracker and always wants to play 'fight' or 'tackle you'.
Checking out their stash...
Teagan was supposed to go in for a heart catheterization surgery on Tues. (in two days), but that was postponed last week after a trip to the ER for a double ear infection and low SATS. After a few hours of O2 and some strong antibiotics, she's doing great again. But her cath has been rescheduled for May 1st and the surgeon wantes her illness free for 3-4 weeks before hand. The cath will let us know if she is a Fontan candidate or if we need to look at other alternatives... (the dreaded 'T' word) Last year in April she had a heart catheterization that showed high pressures in her right ventricle (17 I think) and also her tricuspid valve was moderately regurgitating. Those two combined do not make for a successful fontan candidate, so we've spent this last year adding and increasing meds to try and make an impact on the pressures/regurge. I pray nightly that all the medicines we give her each day are making a difference, but also know that God's perfect plan is being played out in her life each and every day! She is doing pretty well overall and her O2 levels are usually in the low 80s when resting. She asks to be carried after walking for a bit or going up stairs, her lips are frequently blue and she is easily winded- but it doesn't stop her!
I will update again with the results of Bode's scans and also the kids birthday posts soon!