Monday, February 23, 2009

11 months old!

As of 2 days ago, Teagan is officially 11 months old. I can hardly believe we're this close to her 1st birthday already! She is getting stronger and louder everyday and growing into quite the spunky little lady! Her favorite things to do right now are: clapping, waving and saying "hi", trying to crawl (she's so close!), sleeping on her tummy, throwing food off of her highchair, screaming when Gavin does, and putting things in her mouth and letting them hang there. (see pics below) She'll stick something in there and then make a grunting sound to get you to look at her and see how funny she is!
She is trying to pull up to things but can only get up on her knees. She's really good at standing while holding on to something but not quite 'cruising' yet.
Eating is still an issue but thankfully there's no talk of her NG tube coming back. Right now she weighs around 16lbs and isn't gaining much at all. She's taking 4 bottles during the day in between 'meals' and I still feed her at midnight every night when I give her last meds of the day. She's probably drinking a total of 20-24 oz total and I'm still fortifying to around 28 cal... I'm not sure yet what we'll do at the 1yr. mark with the formula/pediasure/whole milk decision. She will need more cals than the whole milk alone but right now its a challenge to get her to drink her formula let alone anything else! (thats a whole other post!) Right now part of her formula is covered by the state but that ends after this month leaving us with a bill of $280 a month if we continue with the formula! I put the word 'meals' in quotes because she's not eating much solid food either, not hardly enought to call it a meal! There are certain foods that she likes but she only takes 2 or 3 bites and then doesn't want anymore. Most of the food that we try ends up on the floor. I'm working with our OT therapist trying to figure out some ways to get Teag to enjoy eating more, they're thinking she may have a food aversion in general after all of the tubes, hospital stays, etc... We were joking that she didn't get either side of our families 'eating genes', we all love to eat more than we should! Even though she's not eating as much as she should, she is still happy and thriving so the plan right now is to keep at it and hope that soon she starts to enjoy food as much as we do!
Our last cardio appt. was in early Jan. and our next scheduled one isn't until April! We go in every 1 1/2 months for a sat check to make sure she is doing good and last week she was in the mid 80's! Right now there is no talk of any upcoming cath's but I know all too well how quickly that can change, so we are thankful for her health today and have been so blessed to have had a pretty uneventful last few months (heart wise).
Several of our heart buddies are having a difficult time right now and could use some of those special prayers like the ones many of you have said for Teagan over the months. Gracie is a sweet little girl who was born with a heart defect similar to Teag's and has had a very rough road from the start. She was born the day before Teagan and her blog is one of the first ones I followed and met many heart friends through. Gracie just underwent a heart transplant and the new heart is not working like it should. Please take a minute to pray for her and her whole family, you can follow her blog in the sidebar or here. Also say a prayer for Lindsay and Owen who are both waiting for a new heart. I cherish the friendships I have made with our 'heart buddies' and their families- we'll praying for all of you!

11 comments:

Katie said...

Such a big girl! Can't wait to see lil' miss spunky in action one of these days!!! Very soon, I hope :)
Love you guys!

The Simmons Family said...

She looks spunky!! HAPPY 11 Month Birthday Teags! I'm so thrilled that she is thriving. The eating has been our biggest issue (well, until transplant). Owen also only eats a few bites at each "meal" but he'll eat any variety of things (positive!). One day... they'll get it and they'll eat like crazy.

Anonymous said...

Such a beautiful little girl, I just get such an overall "happy" when I see the new pics and read about her continued progress. She truly is our little miracle.
love n' big hugs from nana!

Kali said...

She is just so precious!! She is on about the same track as Parker. He isnt really into eating "food" either. When he turned a year old we changed to Pediasure (it has 30 cal/oz). He gains weight pretty good with that. I am so excited that she is standing. Parker started crusing at about a year and is walking about 4-6 steps by himself now (he is 15 months). Happy 11 months--she is too cute!

The Hands said...

I love the hair thingy. It's just about as big as Teagan is! Just a word on the formula-ask your WIC office for a form that the doctor can sign that says that it's medically necessary that Teagan have the formula (if she does need it). Then they will pay for it. Also, Natalie is loving real milk better than the formula. As for the extra calorie thing, I don't know...maybe some Nesquick!;-) (Just joking.) My girl hasn't been gaining much lately either. Maybe it's the time of the year with being the end of winter and getting all run down physically (ie-lack of sun, being outside and getting fresh air.). I guess I should stop before I sound crazy. I can't wait to see the birthday party that Teagan has. With the exciting one that her dad had, I'm sure that she'll be partying BIG. you have a reputation to live up to!

Grandma said...

I can't wait to hold Teagan and Gavin in a few weeks! They are so precious and such a blessing. Busy children make a tired Mommy - hang in there. We love you guys so much! Mom/Grandma

Kali said...

Parker just got his braces about 2 weeks ago and they make such a difference. They give him that extra support. They are called AFO's (ankle foot orthotics). They also make extra wide shoes to go over them. He had to get use to wearing them, but the first day he wore them he stood by himself for a few seconds. Look into it! They are kinda expensive (we were lucky that our insurance paid for most of it).

Carlla said...

Teagen is adorable! Another heart mom here...I came across your link on someones blog. My son Aiden has Shones/HLHS...he had feeding issues for awhile with solids then all of the sudden, seems after he turned 1 year he just starting eating solids so much better. I'm glad to hear that the NG tube gets to stay out! That's awesome!

rudysbeat said...

Thanks for sharing your journey. It comes as a great encouragement to us as we're part of the club and having a tough week. Rudy (HLHS, 10/1/08) is fighting so hard to get home from the hospital. Teagan is beautiful and precious. I'll be checking back.

Rolf
www.rudysbeat.wordpress.com

Anonymous said...

The pics of the kids just make me smile & happy. No Teagan sure didn't get the eating gene from us did she? I'm sure one day she'll discover how good food is! Are you going to have a big birthday party when grandma is there!
Love you all,
Aunt Karen

Lindsay Dean said...

Thanking God for all the wonderful milestones for Teags! Think of you all often......
Love, Suzie and Lindsay!