A brief appearance.....

The NG tube made a brief appearance over the weekend after 3 days of bad eating and throwing up. Teag just wasn't acting like herself and didn't want to eat very much at all. When I would try and get her to eat more, she would gag and throw up- sometimes just from looking at the bottle! I hadn't been feeling the greatest myself, so I assumed she was feeling like me and just didn't have much of an appetite. She just doesn't have the reserves to go for more than a day or two without eating alot so on Sunday night we put the tube back in. Thankfully, by Tues. evening she was able to eat enough on her own that we were able to take it out and get back to normal. I did enjoy the tube for giving meds though, thats the only part about the whole ng that is nice!
I took her in to the pediatrician on Monday just to rule out anything else that could be bothering her. Its always hard to know if its just a 'normal baby' thing or a heart issue when she seems a little off, and of course I always assume that its a heart issue.... Everything checked out ok though and the Dr. seemed to think that part of her not wanting to eat and crying at night is due to teething. Teething?! How nice if it really is something that simple!

Today we had our scheduled cardiology appointment which I was anxious about after everything thats been happening the last few days. Teag finally weighs 14lbs!!! Well, 14 lbs 1 oz to be exact! This was reassuring after our bad eating all weekend. Her sats were great also at 87 and her heart rate/bp were good too. After seeing all of her numbers looking so good, Dr. Toews decided not to do the echo which bummed me out a little. Its always nice to see whats happening on the inside, and know for sure how's she's doing. He didn't want to change any of her meds and we're not scheduled to go in again until January!

Teag's biggest issue of all lately is still her chest wound from her Sept. 9th surgery. It's still an open wound and not healed over yet. It has started to close some and scar but we still have a long way to go. I change her dressing and clean it daily which isn't fun for her, and lately has been causing her alot of pain. Its so frustrating to still be dealing with this almost 2 1/2 months after surgery. The pediatrician looked at it on Monday and said he wouldn't be surprised if it takes another 6-8 weeks to heal up. Everyone is in agreement that there will be a pretty significant scar left, but until its completely healed nothing can really be done to address that. The plastic surgery department at Children's told us to come back in a year and have her evaluated to see what needs to be done.

Here's miss 'itty bitty' sitting up like a big girl! Physical therapy is definitely making a difference and she can sit up for long periods of time by herself now!

Here's a picture of her chest wound today. Its still pretty bad, but actually much better than it was. The dr. said she was close to needing a skin graft in the beginning, so he's impressed with how its healing..... You can see where her skin has grown in filling the hole that used to be there. Now she just has those two open spots to work on before its healed over.