Back to the NG

Happy to have a full tummy again!


So as you can see, I ended up putting the feeding tube back in today. Teagan has just been working way too hard lately to eat, and hasn't been finishing her feeds. Its so stressful to watch her work so hard, and not be able to help her! We went to the dr. today and she'd only gained 1/2 oz since friday and I just knew it was time. My mom intuition was telling me,"just do it!" I feel like I've been putting it off for a week or two now, not wanting to put Teagan through that but ultimately I was forcing her to work harder to eat! It was pretty awful putting it in again now that she's so big and aware of everything going on. But once it was in and we both stopped crying she looked at me and smiled.... I was afraid she would hate me forever! I already feel a little less stressed about her feeds, because there's no pressure anymore. She can eat half of her bottle now and I can finish it for her. I'm just hoping that now we can start really packing on the pounds before her next surgery! She's 4 months and 1 week old today and she weighs 10lbs 14oz. This evening after 3 full feeds in a row (something that hasn't happened in over a month) she was back to her happy, spunky self!

Teagan is supposed to be 'presented' this week during the cardiac surgical conference over at Children's. This means that the team will discuss her case and share their opinions on when her next surgery should be, etc... Our next cardio appt. is a week from wed. and I'm hoping that we'll have a tenative date so we can start planning.

Few more pics, and update...

We had another cardio appt. yesterday and everything went pretty well. Teagan's liver is less congested and her coloring is better overall. The dr. thinks that the higher doses of captopril and lasix are definitely what she needed. But her SATS yesterday were only 70, on her hand and her foot... Usually she's in the upper 70's even as recently as last week, so I was a little concerned. Dr. Toews said that because she's on so much captopril, it could be affecting her SATS or her shunt could have a small obstruction. We go back in 2 weeks for a checkup and if her SATS are still low 70's then we'll schedule her cath. I also took Gavin in with us so Dr. Toews could listen to him and see if he had any issues. (we were previously told that Teagan's defect was most likely genetic and that Gavin could very well have some sort of minor defect) He listened to Gavin for a few minutes without saying anything (which had me sweating) but then he sat up and said,"well, he's totally healthy!" What a relief! Its so nice to not have to worry about Gavin too! I've been praying and praying that Gavin would check out fine, and this was definitely an answer to those prayers!

Teagan is still not eating very well and weighed in yesterday at 10lbs 15oz. She's 4months and 3 days old today! No one wants to put her NG tube back in as long as she continues to gain 1/2 and ounce per day, so we'll see how this week goes! But for now- no tube!

My brother Brian is still here for a few more days and took a few more pictures for us. This time of the whole family! I know some of you (family) wanted a few more so here you go. If you click on the small pics, they'll get bigger and you can save them to your computer!

Our heart buddy Maddie is sailing through her Glenn recovery like the superstar that she is! Her surgery was on Tuesday and they're already talking about moving her to the floor as soon as today! Its so encouraging to watch her do so well! We're praying that Teagan will be able to cruise through the next surgery like Maddie!

Picture Post!

Here are some pictures that my brother Brian took while out here visiting! We're headed in for a weight check today to see if Teagan needs the NG tube. If we do end up putting it back in, atleast her medicine will go down a little easier! Teagan has been pretty happy the last few days and eating ok so hopefully our appointment goes well!